Huntingtons Victoria
Since its creation, Huntington’s Victoria continues to work tirelessly to not only raise awareness but also provide crucial support, resources, and a sense of belonging to those affected by Huntington’s disease regardless of their location. Through its innovative programs, fundraising events and educational initiatives, Huntington’s Victoria continues to lead the way in providing the community with practical strategies and support until there are targeted treatments and eventually a cure.
HV's Fun Day 2024
Saturday 14 December 2024
Welcome to Huntington’s Victoria's Fun Day – a celebration of community, joy, and shared experiences!
Bring friends, family, or come solo! Connect with others in the HD community, reflect on the year, make new memories, and enjoy a day full of laughter and togetherness.
For the past three years, Luna Park has set the stage with rides and games for all ages, making this event a highlight for everyone. Beyond the thrills, it’s a chance to share stories, build relationships, and most importantly… HAVE FUN!
Save the date and join us in ending 2024 on a high note, welcoming the festive season with connection, celebration, and joy. We can’t wait to share it with you!
*Please note: You will need to cater for your own dietary requirements.
Luna Park - The Pavilion
Annual Gala Ball - 2024
Saturday 26 October 2024
This premiere annual event is about fun and celebration, but also for learning about the impact that Huntington's disease has on individuals and families. Attendees include medical and research partners, allied health professionals, corporate partners, supporters and most importantly the Huntington’s community. If you have not attended a Huntington’s Victoria Gala Ball before, please do so. You are most welcome, and we would love to see you there. The theme for this year is 'Masquerade,' and you can interpret it as you like... Wear a beautiful gown or rock a masquerade mask... We cannot wait to see what you come up with!
You can expect: 3-course meal, drinks, music, live auction, raffle and MORE!
*Please note: You are required to be +18 years old to attend.
Plaza Ballroom
Move 4 HD (CANCELLED)
Friday 5 July 2024
Move 4 HD is a dance initiative that celebrates an individual’s ability to move and participate. By doing so, the initiative aims to shift our focus from inability to ability, fostering a sense of value for affected individuals within this community. Current research demonstrates that people who are at risk, gene positive or diagnosed with Huntington’s disease can reduce the impact of the disease and delay progression by staying physically, mentally and socially active.
You can participate by either joining our Zumba classes which will be held throughout July (dates TBC), organising your own Move 4 HD event or sharing your own activity via Instagram, Facebook or Huntington’s Community Connect, inspiring other members of your community to participate in #Move4HD.
TBC
Light It Up 4 HD at Federation Square
Wednesday 22 May 2024
Internationally, May is the awareness-raising month for Huntington’s disease.
The Light It Up 4 HD campaign aims to shine a light on Huntington’s disease and the impact it has on our community. We have been fortunate to receive ongoing significant support from our partners across metropolitan and regional Victoria who continue to light up their iconic buildings in blue in support of Huntington’s Disease May Awareness month.
Join us this May 22nd as we get together at the Federation Square Swanston Street Forecourt for pizza and fun as the city of Melbourne lights up in blue before our eyes. Let us know if you are coming today!
What to expect: Pizza, beautiful sights, and lots of fun!
What to bring: Yourself, friends, family and something BLUE! (Best dressed to receive a prize!)
Federation Square
Merchandise
Huntington's Victoria Merchandise
Huntington's Victoria Merchandise
HV's Family Fun Day
Saturday 10 December 2022
Come on down and join us at our second Family Fun Day and celebrate the end of 2022 with the HD community along with your family and friends.
Luna Park - The Pavilion
HV's Family Fun Day: Expression of Interest
Saturday 10 December 2022
*PLEASE NOTE: This is only an expression of interest, not a ticket to the event. Ticket prices TBA.
Come on down and join us at our second Family Fun Day and celebrate the end of 2022 with the HD community along with your family and friends.
Luna Park - The Pavilion
Move 4 HD: Expression of Interest
Tuesday 1 November 2022
Move 4 HD is a unique gathering that aims to encourage our community to participate in physical, cognitive and social activity, all of which have been shown by research to slow and delay the progression of HD symptoms. In an afternoon of dance fitness, this awareness raising event will celebrate a person’s ability to move and shift our focus from inability to ability.
Join us for dance fitness class. All abilities welcome.
Date: TBA
Time of event: TBA
*PLEASE NOTE: This is only an expression of interest, not a ticket to the event. Ticket prices TBA.
TBA
Move 4 HD
Friday 25 November 2022
Move 4 HD is a unique gathering that aims to encourage our community to participate in physical, cognitive and social activity, all of which have been shown by research to slow and delay the progression of HD symptoms. In an afternoon of dance fitness, this awareness raising event will celebrate a person’s ability to move and shift our focus from inability to ability.
Join us for a ZUMBA class. There will be a halftime break. All abilities welcome.
Date: Saturday 12 November 2022
Time of event: TBA
TBA
Community Conference 2022
Saturday 29 October 2022
The 2022 Huntington’s Victoria Community Conference is being held in person this year, with limited spots available.
The conference will include presentations on topics such as financial and future planning, living well with HD, research update and more! This is your opportunity to ask questions directly from our speakers, meet our dedicated team members and connect with other professionals and members of the HD community.
Light refreshment and lunch will be served.
Ian Potter Auditorium
Remembrance Service
Saturday 22 October 2022
This year we will be holding our 2nd Remembrance service. It will be a non-denominational service where we can gather together as a community and remember our loved ones who have passed from HD. Professionals are also welcome at the service.
What to bring: Candle (we will light a candle at one point during the ceremony), picture of your loved one (if you would like to have one).
Gala Ball 2022
Friday 6 May 2022
The Gala Ball is our premier fundraising event of the year, all funds raised from this night go directly to supporting our community through our services. This event is about fun and celebration, but also for learning about the impact that this disease has on individuals and families. You can expect: drinks and a 3-course meal, music, live auction, raffle and MORE!
You are currently required to be 18+ and fully vaccinated or hold a vaccine exemption for this event.
Plaza Ballroom
Gala Ball 2022-1
Friday 6 May 2022
TO BOOK TICKETS PLEASE GO TO OUR NEW EVENT BOOKING PAGE
https://www.trybooking.com/BXUPP
THANK YOU
Plaza Ballroom
test table event
Tuesday 8 March 2022
test
Plaza Ballroom
TEST- TABLE ALLOCATION
Friday 18 February 2022
TEST- TABLE ALLOCATION
Plaza Ballroom
HV's Family Fun Day
Saturday 11 December 2021
Come on down and join us at our very first Family Fun Day at Luna Park! Your ticket includes: access to all the rides at Luna Park from 11am until close, face painters, activities in the HV tent and more! Celebrate the end of 2021 with the HD community along with your family and friends.
In line with Government Requirements this event is fully vaccinated and you will be required to show proof of your vaccination status or exemption to attend, aged 12+
Luna Park
Remembrance Service (Online)
Saturday 10 July 2021
This year we will be holding our first Remembrance service. It will be a non-denominational service where we can gather together as a community and remember our loved ones who have passed from HD. Professionals are also welcome at the service. This service will be hosted online via Zoom meeting.
What to bring: Candle (we will light a candle at one point during the ceremony), picture of your loved one (if you would like to have one).
Community Conference 2021
Saturday 10 July 2021
The Huntington’s Victoria 2021 community conference is being held both in person and online this year.
The conference will include presentations on topics such as financial planning, NDIS, caring for someone with HD, research and more! We will also be hosting live Q and As where you will be able to submit your questions.
Light refreshments and lunch will be provided.
TBC
Remembrance Service (In Person)
Saturday 19 June 2021
This year we will be holding our first Remembrance service. It will be a non-denominational service where we can gather together as a community and remember our loved ones who have passed from HD. Professionals are also welcome at the service. When attending in person, coffee, tea and biccys will be served.
What to bring: Candle (if attending in person you will be provided with one, we will be lighting a candle during the ceremony), picture of your loved one (if you would like to bring one).
Huntington's Victoria Office
Remembrance Service (Online)
Saturday 29 May 2021
This year we will be holding our first Remembrance service. It will be a non-denominational service where we can gather together as a community and remember our loved ones who have passed from HD. Professionals are also welcome at the service. This service will be hosted online via Zoom meeting.
Huntington's Victoria Office
Move 4 HD - IN PERSON
Saturday 15 May 2021
BOOK IF ATTENDING IN PERSON
Move 4 HD is a unique gathering that aims to encourage our community to participate in physical, cognitive and social activity, all of which have been shown by research to slow and delay the progression of HD symptoms. In an afternoon of dance fitness, this awareness raising event will celebrate a person’s ability to move and shift our focus from inability to ability.
Join us for a ZUMBA class. There will be a halftime break. All abilities welcome.
Girl Guide Hall
Move 4 HD - ONLINE
Saturday 15 May 2021
Move 4 HD is a unique gathering that aims to encourage our community to participate in physical, cognitive and social activity, all of which have been shown by research to slow and delay the progression of HD symptoms. In an afternoon of dance fitness, this awareness raising event will celebrate a person’s ability to move and shift our focus from inability to ability.
Join us for a ZUMBA class. There will be a half time break. All abilities welcome.
Let's get moving!
Community Day 2019
Saturday 18 May 2019
We are excited to invite you to our annual Community Day on Saturday May 18th.
Our Community Day is a free event hosted by Huntington's Victoria where you can hear researchers, medical professionals and community members speak about their expert subjects. The themes for the day will be Living well with HD, our Community Panel and of course Research.
Join us for a fun and informative day - we can't wait!
Kenneth Myer Building
Huntington's Victoria AGM 2018
Thursday 13 December 2018
The AGM is an opportunity for you to join the Board and CEO to receive an update on HV's accomplishments to date and future directions.
Huntington's Victoria Board Room
Huntington's Victoria Annual Gala Ball 2018
Saturday 27 October 2018
This annual event aims to raise awareness of Huntington's disease and vital funds to ensure we can continue to deliver quality services. This is a night filled with entertainment, live music, dancing and a fun atmosphere where the community and its supporters can come together to build the profile of Huntington's Victoria.
DRESS CODE - A touch of blue
ZINC
Dance Fitness for Huntington's Disease 2018
Sunday 27 May 2018
Join us for Dance Fitness at ZINC!
This health and fitness event will celebrate everyone’s ability to move and participate. Let’s shift our focus from exclusion to inclusion and inability to ability and dance the afternoon away.
With the event starting at 11.30 AM the first 30 minutes is dedicated for children to dance and have fun. From 12.00 till 2.00 PM the adults have a chance to shake their booty.
ZINC Fed Square
Huntington's Community Day 2018
Saturday 12 May 2018
To all of our community members, this is your chance to see what is happening in the Huntington's Disease space. You will have a chance to meet with the researchers and to get some information either for someone you know or just come to learn more about Huntington's Disease.
This event starts at 10 AM - 4 PM with finger food and drinks provided.
NAB Docklands
NDIS Roadshow - Expression of Interest
Monday 23 April 2018
The National Disability Insurance Scheme (NDIS) is a new Australia-wide approach to caring and providing supports for people with disability under the age of 65. The roll out of NDIS provides an exciting opportunity for individuals and their families, however the transition can be a daunting process.
Huntington’s Victoria will be holding FREE Q & A session on NDIS to help prepare you for transition. Everyone is welcome to join us and we are looking forward to seeing you.
Huntington's Victoria Office
NDIS Roadshow - Berwick
Monday 26 March 2018
The National Disability Insurance Scheme (NDIS) is a new Australia-wide approach to caring and providing supports for people with disability under the age of 65. The roll out of NDIS provides an exciting opportunity for individuals and their families, however the transition can be a daunting process.
Huntington’s Victoria will be holding FREE Q & A session on NDIS to help prepare you for transition. Everyone is welcome to join us and we are looking forward to seeing you.
Berwick Neighbourhood Centre
NDIS Roadshow - Bayside Area
Wednesday 31 January 2018
The National Disability Insurance Scheme (NDIS) is a new Australia-wide approach to caring and providing supports for people with disability under the age of 65. The roll out of NDIS provides an exciting opportunity for individuals and their families, however the transition can be a daunting process.
Huntington’s Victoria will be holding FREE Q & A session on NDIS to help prepare you for transition. Everyone is welcome to join us and we are looking forward to seeing you.
Belvedere Community Centre
NDIS Roadshow - Broadmeadows
Monday 18 December 2017
The National Disability Insurance Scheme (NDIS) is a new Australia-wide approach to caring and providing supports for people with disability under the age of 65. The roll out of NDIS provides an exciting opportunity for individuals and their families, however the transition can be a daunting process.
Huntington’s Victoria will be holding FREE Q & A session on NDIS to help prepare you for transition. Everyone is welcome to join us and we are looking forward to seeing you.
Broadmeadows Community Hub
NDIS Roadshow - Hawthorn
Monday 11 December 2017
The National Disability Insurance Scheme (NDIS) is a new Australia-wide approach to caring and providing supports for people with disability under the age of 65. The roll out of NDIS provides an exciting opportunity for individuals and their families, however the transition can be a daunting process.
Huntington’s Victoria will be holding FREE Q & A session on NDIS to help prepare you for transition. Everyone is welcome to join us and we are looking forward to seeing you.
Huntington's Victoria
Huntington's Victoria AGM 2017
Thursday 30 November 2017
The AGM is an opportunity for you to join the Board and CEO to receive an update on HV's accomplishments to date and future directions.
NAB - The Arena
2017 HD & NDIS Road Show
Friday 24 November 2017
This is an awareness-building, education session about Huntington's disease (HD) HV and NDIS. the session is free of charge and opened to all community members and service providers who have been impacted by or are working with the community HD.
Albury and District Private Nursing Home
HV 2017 Road Show - Mildura
19 May 2017 10:00 AM
The HV Road Show is an awareness-building, education session about Huntington's disease (HD) and Huntington's Victoria. The session is free of charge and open to all who have been impacted by or interested in HD.
Mildura Base Hospital
Dance Fitness for Huntington's
Saturday 25 February 2017
Become a Huntington's Champion, get fit and join us in raising awareness for Huntington's Disease!
The Arena, NAB
2016 HV Road Show - Morwell
Wednesday 7 December 2016
2016 HV Road Show is an awareness-building, education session about Huntington's disease (HD) and Huntington's Victoria. the session is free of charge and opened to all who have been impacted by or interested in HD.
Latrobe Community Health Service
2016 HV Road Show - Ballarat
Thursday 24 November 2016
2016 HV Road Show is an awareness-building, education session about Huntington's disease (HD) and Huntington's Victoria. the session is free of charge and opened to all who have been impacted by or interested in HD.
Karden Disability Support Foundation
Huntington's Victoria Annual General Meeting
Monday 21 November 2016
Join us for our 2015-2016 AGM and become involved with important matters of the organisation. The AGM will be followed by a screening of the documentary "The Lion's Mouth Opens".
The Arena at NAB
2016 HV Road Show - Bairnsdale - HAS BEEN CANCELLED!
Tuesday 18 October 2016
This event is a one-off, free off charge education and awareness raising session about Huntington's disease (HD). It is open to all impacted by HD.
Community Meeting Room
Albury/Wodonga/Wangaratta HD Peer Support Group meeting
Wednesday 28 September 2016
This is a Peer Support Group meeting for all individuals impacted by HD who live in the Albury/Wodonga/Wangaratta area.
Commercial Club
2016 HV Road Show - Geelong
Friday 9 September 2016
Huntington's Victoria is delivering a one-off Huntington's disease education session in Geelong as part of its 2016 Road Show tour of rural and regional Victoria. This event aims to increase awareness of Huntington's disease and bring together all individuals impacted by this disease.
Belmont Library
HV Road Show - Warrnambool
Friday 15 July 2016
Huntington's Victoria is delivering a one-off Huntington's disease education session in Warrnambool as part of its 2016 Road Show tour of rural and regional Victoria.
Warrnambool Community Health
HV 2016 Road Show - Wangaratta
Monday 20 June 2016
Huntington's Victoria is delivering a one-off Huntington's disease education session in Bendigo as part of its 2016 Road Show tour of rural and regional Victoria.
Gateway Health
HV 2016 Roadshow - Bendigo
Friday 27 May 2016
Huntington's Victoria is delivering a one-off Huntington's Disease education session in Bendigo as part of it's 2016 Road Show.
Bendigo Library
HV 2016 Road Show - Mildura
Friday 18 March 2016
Huntington's Victoria is delivering a one-off Huntington's Disease education session in Mildura as part of it's 2016 Road Show.
Mildura Base Hospital
Zumba 4 Huntington's (session 2)
Saturday 20 February 2016
Huntington's disease is a hereditary, neurodegenerative disease without a cure. Please help us reduce the circumstances that led to discrimination and isolation and raise awareness of the little known disease by joining us at Zumba 4 Huntington's!
St. Augustine's Parish Hall
Zumba 4 Huntington's (session 1)
Saturday 6 February 2016
Huntington's disease is a hereditary, neurodegenerative disease without a cure. Please help us reduc
Rowville Community Centre
Huntington's Victoria AGM
Tuesday 24 November 2015
Join us for this years AGM the meeting will take place from 6pm and following its completion the doc
The Arena, NAB
Huntington's Victoria Charity Gala Ball
Saturday 17 October 2015
You're invited to the 2015 Huntington's Victoria Charity Gala Ball! Join us at Leonda By The Yarra o
Leonda By The Yarra
2015 Huntington's Disease Community Day
Saturday 18 July 2015
Join your community for this annual event...
When: Saturday 18 July 2015, 9:00am—3:30pm (9:30 re
Melbourne City Mission Conference Centre
